Cycling wants to do its bit based on pedaling to give visibility and join forces to fight against West Syndrome, a rare neurological disease that affects babies under one year of age of age that usually affects one in four live births and causes babies to lose acquired skills and paralyze their development.
For this reason, the creators of the Divertia en Bike initiative have launched to give visibility to this disease and raise funds at the stroke of a pedal to help those who suffer from West Syndrome either by helping families and collaborating with research and dissemination of this disease.
From Divertia on Bike, who have already promoted a virtual cycling race during the pandemic to raise funds for the Red Cross, They will participate in several bicycle races such as the Pilgrim Race to raise funds for the West Syndrome Foundation, on whose website (www.syndromedewest.org) you can learn more about this disease.
The presentation ceremony for this initiative will take place on May 9 at the Truss Madrid by Wizink at 12:00 and will be attended by Leo Harlem, Mago More or the triathlete Diego Méntrida, who has a brother who suffers from Syndrome of West, among others. In this way they intend to give visibility to a disease that can be combated with an early diagnosis and the fastest possible intervention to take advantage of the plasticity that the baby’s brain still has up to two years of life.