Emma Heming Willis is opening up about a heartbreaking chapter in her life. She’s sharing what it’s like to live with husband Bruce Willis. He’s battling frontotemporal dementia, or FTD.
Emma, 47, recently spoke on a special “Good Morning America” segment. It was a preview of “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special.” She recalled the first subtle shifts in Bruce, 70. He used to be so lively and talkative. But he started to get quieter. When family would gather, he would just fade into the background.
Noted journalist Diane Sawyer highlighted more signs. Bruce began losing his words. A childhood stutter even came back. Family members noticed he was less involved. Emma shared that he became distant. He seemed cold, which was not like the warm, loving Bruce they knew. This stark change was frightening for her.
Getting a clear picture of what was happening wasn’t easy. Emma mentioned that many doctors aren’t familiar with FTD. It often gets mistaken for other conditions. Bruce’s family first announced a language disorder called aphasia in March 2022. But almost a year later, in February 2023, they confirmed a new diagnosis. His condition had moved to frontotemporal dementia. FTD can change a person’s personality, behavior, and how they speak.
The family released a statement in February 2023. They said communication problems were just one symptom. It was painful, but a relief to finally have a clear diagnosis. Sawyer, 79, revealed that an MRI scan confirmed the brain disorder. For Emma, hearing the diagnosis was a blur. “I came out of there with… nothing,” she confessed. “I couldn’t even say the name. I didn’t get it.” She described feeling utterly scared. “I just heard it and then nothing else. It was like falling without a net.”
When asked if Bruce understood the news, Emma admitted, “I don’t think Bruce has connected the dots.” Despite the severe brain issues, Bruce is doing well physically. “He’s still able to move around a lot,” Emma explained. “His general health is very good.”
Bruce Willis and Emma Heming Willis Theo Wargo/Getty Images for Film at Lincoln Center
However, it’s his brain that’s letting him down. His ability to use language is fading. “We’ve learned to adjust,” she added. “We now have a different way to communicate with him.” You can watch a clip from the special for more insights.
Sawyer wondered if Bruce ever returned to his old self. Emma paused, fighting back tears. She shares two daughters with Bruce: Mabel, 13, and Evelyn, 11. Bruce also has three older daughters, Rumer, 37, Scout, 34, and Tallulah, 31, with ex-wife Demi Moore. “Not for days, but for moments,” Emma replied. She finds comfort in his deep laugh. Sometimes she sees a sparkle in his eyes. Or a familiar half-smile. “Those take me back,” she said. “It’s tough because those moments come and go so quickly.” Still, she feels thankful. “I’m grateful my husband is still very much here.”
This intimate look into Bruce’s journey will air soon. “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special” is set for Tuesday, August 26. You can watch it at 8 p.m. ET on ABC.